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Silos Deter Collaboration: Implications for Dementia Care and Research

When I began working with proposal teams for a major defense contractor during the 1990s, I came up against silos. If someone outside the program made a suggestion, team members didn’t want to hear it. “NIH,” they said. Aka, “Not invented here.”

Raised in a competitive household, I have rebelled against this mindset throughout my life and strive to enthusiastically embrace a collaborative approach. Unfortunately, I have encountered this silo mentality when working with organizations tasked with helping caregivers and people with dementia. And the stakes couldn’t be higher in this arena.

[See: 5 Ways to Cope With Mild Cognitive Impairment.]

When Silos Stifle Synergies

Eighteen years ago, after presenting at an Alzheimer’s conference, a dozen of us gathered to celebrate. We raised our wine glasses in a hopeful toast: “Here’s to finding a cure for Alzheimer’s within five years!” Despite the optimism felt that evening, my father, who lived with Alzheimer’s, died two years later.

It’s time we hold accountable those who receive tax dollars for government-sponsored research. With millions of lives at stake and hundreds of billions of dollars spent annually on health care, time is of the essence to apply more meaningful metrics to research and care initiatives.

One way to achieve success is to fund teams who collaborate across organizations and even geographic lines. There is no time to waste with leaders who breed mediocrity through an incestuous winner-takes-all approach. Sure, healthy competition fosters innovation, but with millions of lives at stake, this is not a game. We urgently need a solution.

Too many organizations run not-invented-here-style silo operations in the very communities they serve. Some focus more on self-promotion, while their customers wait for a solution to a problem. Instead of collaborating with experts in their communities, they invest time and effort (not to mention donor dollars) reinventing in-house what’s already available.

Several years ago, I began approaching exhibitors at conferences where I presented the keynote address. Assisted living communities had attractive displays and pads of paper, pens and even my books to help build awareness of their care services. Research organizations had informative displays and invited people to sign up for details about clinical studies. As attendees returned to the breakout sessions, and all was quiet, they’d either stand, read, snack on something or visit the restroom.

I asked one research representative about how her organization found volunteers to sign up for clinical studies. She explained that it was hard to find research participants. Beyond the lack of volunteers, each study had unique requirements. I asked, “Have you worked with other organizations that may refer people to you? The adult day care two tables down or even that assisted living community across the aisle work with people who serve as your target market.” Sometimes, exhibitors would stare at me as if I were speaking a foreign language. “You can improve your results with referrals,” I’d add. Others looked down and shook their heads. The brave ones rolled their eyes and answered, “Upper management won’t allow us to work with these other organizations.” When I asked why, they shrugged. They didn’t have an answer.

With so many organizations competing for recognition, the family caregiver faces a dizzying array of choices. “What are my care options? Which one is best given my loved one’s needs? How do I choose?” Most family caregivers end up overwhelmed and don’t make a decision — a result of these primary agencies not talking to one another. Agencies best serve caregiving families when they are willing to work together and refer each other’s services when theirs may not initially be the optimal choice. For example, in-home care and adult day services can work to offer their services before families are ready for assisted living.

[See: 14 Ways Caregivers Can Care for Themselves.]

Invite the Outliers — Those at the Fringes, Who Think Differently

We can do better. It means identifying and inviting diverse thinkers to the table. Take an outlier who only has elementary knowledge of chemistry. On a whim, a Ph.D. researcher invites this person to look through the lens of a microscope. Seeing something that even the trained eye of the researcher missed, this outlier’s observation becomes the bud of a new discovery.

Years ago, members of leading agencies and policy-recommending governmental groups met to help people with dementia and their caregivers. Surprisingly, the very people they were tasked with serving were rarely — if ever — invited to present at these meetings or to serve in paid advisory roles alongside other staff in their organizations.

[See: Easy Ways to Protect Your Aging Brain.]

Celebrity spokespeople are often invited to help gain recognition and funding, since they have access to a greater range of resources, unlike the millions of families struggling to care for a loved one. Meanwhile, the voices of people with dementia fell upon deaf ears. Due to the persistent advocacy efforts of longtime organizations such as Dementia Advocacy and Support Network, or DASNI, and the spearheading of the Dementia Alliance International, or DAI, people with dementia have been invited to the table to help guide the initiatives and policies designed to help them. These agencies and organizations must more proactively include the very people they intend to serve — currently, the outliers — as they take steps in the right direction.

Whether it’s creating leading technologies for our nation’s defense or defending against the onslaught of dementia while offering creative care options, leaders are encouraged to step out of their silos and invite diverse thinkers to their teams. Our ever-changing health care industry demands it. The millions of families who care for people with dementia demand it.

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Silos Deter Collaboration: Implications for Dementia Care and Research originally appeared on usnews.com

Don’t Settle for Student Loans to Pay for Online Education

Online college programs are becoming a more popular choice for prospective students, with one study finding that more than 6 million students enrolled in at least one online course in fall 2015. The popularity of these courses can be attributed in part to their flexibility with working adults' schedules, students' ability to progress more quickly through online programs and, oftentimes, cheaper tuition. [See 10 low-cost online bachelor's programs for out-of-state students.]Online degrees can be beneficial to many college students, but some studies have shown online learners complete their programs at lower rates than students at traditional brick-and-mortar campuses. Individuals with student loans but no degree comprise two-thirds of defaulted borrowers. Though these numbers are not encouraging, just like for traditional programs, there are ways to reduce how much you'll need to borrow for an online program to ensure you won't become one of these statistics. Don't just settle on borrowing student loans to cover the whole cost of your program and living expenses. Instead, start thinking about how to cut costs and cover your balance in different ways, such as the following. -- Grants and scholarships: Even though you are taking an online course, you can still apply and receive grants and scholarships. But your first step should be to complete the Free Application for Federal Student Aid, commonly referred to as the FAFSA, which will allow you to receive a Pell Grant if your expected family contribution is low enough. The EFC criteria and award amounts are adjusted annually, but the 2017-2018 academic year awards range from $606 to $5,920, which could significantly lower the amount you borrow annually. Your next step is to apply for scholarships. You can start by checking online scholarship search engines, such as the Salt Scholarship Search, College Board's BigFuture and Peterson's. But don't forget to take advantage of local organizations and your school's financial aid office. Both may offer scholarships that you can't find with a national scholarship search. [Review these 10 sites to kick off your scholarship search.]For instance, organizations like the Elks Club, Knights of Columbus or the Rotary Club typically offer scholarships annually to local students. Just because you're going to school online doesn't mean you're ineligible. Visit your local library for scholarship listings, and ask around town. You might be surprised how many local organizations offer scholarships. While these scholarships typically aren't large, every little bit counts. Each dollar you receive in a scholarship is a dollar you don't have to borrow and pay interest on. -- Work-study: Another option for online students may be work-study awards. Not all students enrolled in online programs are eligible, but students at some schools -- including, for example, SUNY Empire State College and Liberty University -- are. Work-study awards are not given upfront like scholarships and grants. In most cases, they are an offer to earn up to the awarded amount if you secure an eligible work-study job. While there is a misconception that all work-study jobs must be on campus, students can work for off-campus, nonprofit or public employers as long as the work is in the public's interest. You may be able to work for a for-profit employer if the job is relevant to your course of study. No matter who the outside employer is, it will need to have an established agreement with your college for you to receive work-study funds. Remember, to be eligible for federal financial aid, you must be enrolled and pursuing a degree or certificate. If you're not working toward a credential, Pell Grants and work-study won't be option, but you may still be able to take advantage of private scholarships -- just be sure to read the eligibility criteria carefully. [Explore what to know about financial aid in online programs.]-- Pay as you go: One of the great benefits to enrolling online is the flexible schedule, which can allow you to complete your college coursework around your responsibilities. But prospective students often overlook using their part- or full-time job earnings as an option for paying for college. Almost 80 percent of college students in 2015 worked at least part time while attending classes, according to the National Center for Education Statistics. By budgeting and thinking strategically about your college costs, you can likely reduce your dependence on student loans by paying a portion out of pocket. Many -- but not all -- online programs are less expensive than traditional programs and often have shorter payment periods. Six, eight or 10 weeks are common course durations. Because of the frequency of payments in an online setting, you may be well-placed to pay as you go and possibly avoid borrowing altogether. Attending college online and avoiding student loans may be challenging, but if you are willing to put in the effort, you can limit the amount you need to borrow. More from U.S. News Q&A: Understanding Student Loan Discharge Eligibility Student Loan Refinancing Isn't Right for All Borrowers
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